A Photograph of me without me in it

A Photograph of me without me in it
A photograph of me without me in it

Wednesday, May 1, 2019

Beginning Again

For my writing class, I have written three possible beginnings for a personal essay and outlined four others. It’s not just that I’m having trouble getting started. It’s that I can’t quite figure out what my story is. And I’ve been writing it for twelve years.

This difficulty getting started reminds me of the time, seven years ago, when I sat down with my niece Isabella, who was struggling to write her personal essay for college admissions. She had asked for help, but I didn’t want to help her if all she needed was a little encouragement, so I asked if she’d tried already. She said she had, and her eyes watered. 

“How many have you tried?” I asked.


I helped her. She graduated from Duke last year and now works for Twitter. The problem, clearly, was never smarts, and it wasn’t that she didn’t have anything to say. Maybe she was putting a lot of pressure on herself to write something that was both true and effective. Or maybe that’s my issue.

I’m not going to try and re-try 85 times, but I feel like I’m on Isabella’s trajectory. I keep thinking of Prufrock’s lines in T.S. Elliot’s poem, “The Love Song of J. Alfred Prufrock”:

When I am pinned and wriggling on the wall, 
Then how should I begin 
To spit out all the butt-ends of my days and ways? 

Prufrock seems to be trying to express love for someone, but he’s frozen, immobilized by his fear. I’m not trying to express love, and I don’t think I’m afraid to speak, but I do feel paralyzed. How should I begin?

First, I’m thinking and re-thinking about what I want to say. I’ve been so surprised about the gifts of these tumors that I haven’t been writing about the losses. I wonder if grief is at the heart of my story, and I need to address it. 

Thinking about this Sunday night, I wrote: 

My story is that I have never been conventional, one of the crowd, one to fit in. But I have tried. I was a feminist from a young age, staging my first feminist protest when I was five (or 6.) At 30, I divorced my husband and came out as a lesbian. Also, I did not choose a career where I might have made a lot of money, though I’m pretty sure I could have. 

Now disabilities have freed me—or cut me—from any possibility of being “normal.” Now I am not trying to be something I should be, rushing, overworking. I am more myself. Unconventional.

This has been freeing, but it’s also upsetting. In addition to being released from social expectations, I have lost parts of myself that I didn’t want to lose. So though there have been gifts from my tumors and disabilities, the losses are painful.

Although I’ve been writing about how grateful I feel—and I do feel grateful for my life and the gifts of this life—I’m also pissed. So far I’ve only been writing about gratitude, but I need to also write about feeling angry.

So how should I begin?          

Maybe I should begin with my anger, like this: 

The curb seemed steep, and I needed to step down it to get to my car’s door. Leaning my weight onto my cane, I struggled to remain upright while I stepped off the curb to my little blue Honda in its disabled parking spot. A middle-aged woman whisked past me. It was the end of the day at the high school where I worked as a literacy specialist, and I was so tired I couldn’t feel my fingertips. The speedy woman kept looking back at me on the way to her car in one of the two non-disabled spots past mine. I could feel her watching as she zipped to her car and I fumbled with my keys, cane and backpack. I hated being watched when I struggled.
She hollered over her shoulder at me, “You’re so lucky you get to park in that space!” Then she dropped into her car, ripped into reverse and spun her tires as she left the small lot.
I paused in my attempt to get the key into the keyhole, fuming. I wanted to yell something cutting at her, something that might make her regret such a stupid comment. I wanted to tell her that when I had walked more easily, I had parked further from the door, leaving closer spaces for those who needed them. I wanted to tell her I had hiked in the mountains, biked more often than driven, traveled the dusty backroads of lands where I knew neither the language nor the customs. I wanted to say I had been a high school classroom teacher, but I couldn’t manage teaching teenagers anymore, so after taking a year off for healing and learning to walk again, I was now working part-time, trying to help other teachers. 
I wanted to tell this zippy woman about loss and about how I was doing my best. I wanted to tell her the comment hurt. I wanted to hurt her back. But she was gone, so I returned my focus to my key, my cane, and backpack, held the window’s edge for balance, and worked my way into the car. Before driving, I took a deep breath and exhaled, shaking my head as if I could shake off how offended I felt. When my hands stopped trembling, I put the key in the ignition and backed out of the space. I drove home slowly, so I wouldn’t run into anyone. Each time an impatient driver laid on the horn, I pretended I had a bumper sticker that read, “Honk if you think I’m beautiful.” That way I could laugh at their impatience.
Sometimes, my losses since neurosurgery to remove my first brain tumor overwhelmed me, but I kept trying to return to the life I’d lived before surgery. I couldn’t. I felt frustrated and angry at this woman and at my life. 
Now, twelve years out from surgery, I’ve had radiation for a second tumor and survived a car accident that sent me to the regional trauma center. Now, I neither drive my car nor work for a living. I’m living a new life.
In this new life, I do not feel lucky for my losses. I do feel grateful for the gift of living more slowly, more patient and aware of beauty everywhere, more open to so much kindness, less offended by the rapid world I am no longer part of. I am making peace, but I’m not at peace. I wonder if I ever will be.

Or maybe I should begin with a moment of realizing my life had changed, like this:

I looked at the high school freshmen, and they looked back at me. Twenty-four students sat in chairs crowded into the square their teacher had marked with masking tape. For this moment, the students were quiet and still. I was not their teacher. I was a literacy coach working to help their teacher meet their learning needs. I wasn’t assigned to him because he was weak. He had a strong reputation and had requested we work together in this class he was teaching for freshmen whose middle school teachers and counselor had identified as at risk of dropping out. Each week, we planned together. Then I observed the class and we debriefed the session. The previous week, we had talked about this class’s need for a crisp lesson, and he had asked me to model this crispness. I was excited for this opportunity to lead a class full of students, something I’d seldom done since neurosurgery to remove my first tumor had left me with disabilities. 
I fumbled the papers in my hands, trying to hold my cane as well as holding the papers where I could read them. I needed to get started, but there was so much to figure out. How could I keep my balance and seem confident? How could I read and simultaneously pay attention to them? This used to come so naturally. Now, I couldn’t even get started. I knew their attention, I was fragile and likely to break, so I started talking even though I wasn’t ready. 
For the first ten seconds, the students looked quietly up at me, the closest boys so near they could probably see my hands trembling. When I struggled to hand out papers, these boys twisted to look behind them at the second row of boys who were kicking their chairs.  As I finally began to read from the example, the whole class giggled at one another and gave up even a pretense of paying attention. 
In our work together, Todd and I had been talking about how to teach his freshman class. It’s a lively group, smart but not scholarly, and Todd struggled to get and maintain their attention during lessons. I was also struggling, and I suspected I was not helping. This had been so easy in my imagination. Even Tricia, with whom I’d connected throughout the year, started giggling with the friend next to her, then yelled at a pair of boys in the back, “Shut up!” She was laughing. My stomach tightened like I was going to vomit. 
The students were restless, talking to one another over me. I tried to continue, but it was impossible. I just couldn’t do it. I could not do what I used to do. I looked at Todd.
Todd scolded the class for treating a guest teacher so rudely and regained the responsibility of working with the group as a whole. For the rest of the class period, I worked with smaller groups. After the class, Todd and I discussed what we had learned about the students, what we wondered, and what his next steps with these students might be. 
After the debrief, I confessed how hard it was to experience what I could no longer do. In this moment of quiet reflection and confession, I wept. A tear slipped from my left eye, running warmly down my face. My right eye had not teared since surgery. I couldn’t even cry like I used to. 
It was time to acknowledge that the high school teaching part of my life was over. I was no longer the person these students and their teachers needed.
I ‘d need to feel gratitude for the time I’d had, and to seek my new adventure, but I wasn’t yet ready for gratitude. I hurt with loss.

Or maybe I should begin with the emotional complexity of the gifts and losses I’ve experienced, like this:

I sat on a log in the shade while my partner Ann throw a miniature tennis ball for our dog Dosey. Ann threw. Dosey ran. I sat. 
It was a blue sky day in usually rainy Seattle, and the April air was cool without the hint of snow it had all winter. Ann picked up the orange and blue ball to toss it underhanded across the dog park’s square. Dosey raced off before Ann had even gotten the ball. Dosey’s hair streamed back from the force of her speed, and her tail, usually a fluffy plume, flew straight behind her like a flag on a windy day.  The ball hit a tuft of spring green grass and bounced high in front of her. As she leapt and twisted her twelve-pound body to snatch the ball, her brown ears flopped back, and her body’s white hair gleamed. I could swear she was smiling as she trotted back to Ann, dropped the ball a few feet in front of her, and dashed off again. 
I loved watching our puppy playing so joyfully, and I felt frustrated that because of my disabilities I couldn’t drive her to this park or throw the ball myself. I could only sit on this log in the shade, my cane close at hand, and watch.
I knew there were gifts from my tumors, and Dosey was one of them. We couldn’t have had a dog before my brain tumors. In those days, we both spent our week-days at work. I was away from home most of the day, rising at four a.m. to be at the gym by five to swim and lift weights and hurry through my sun salutation before my workday began. 
This was a happy day, and mine was a happy story. Through my losses, I had learned to live differently and found a kind of peace in my slower, unemployed life. My wife was lovely, and my dog smiled. Without this disease, my life with my wife would be different than this one. We wouldn’t have a puppy. How lucky I was. 
I could think cheerful thoughts, but I didn’t feel happy. The muscles around my throat tightened, aching from the strain. I felt a gob in my throat that I couldn’t swallow, and I couldn’t pull enough air through the nostril that took in air today. I ached, but I smiled. I held my body stiff, still. I would not cry. 
I can imagine so many ways to begin. After all, I have a lot of stories in me. It’s been twelve years since surgery, and a lot has surprised me. Tired of drafting beginnings, I went to shorthand for the next four:
1.    Being helped across a street I did not want to cross. I stood on the corner and thought about: 
a.    Complications from surgery—conversation with nurse Joey or learning to walk
b.    After surgery: The graduate class I couldn’t participate in.
c.    Who I thought I should be—golden retriever
d.    Sleeping at Susan and Rod’s
My “helpers” gave each other high fives. I crossed back.
2.    In the trauma center, after the car accident. Sitting with Ellen—"Ann’s been through too much.”
a.    Surgery. “Complications.”
b.    “Goldie”—Alex’s nickname for me because I always wanted things not too cold and not too hot; not too hard and not too soft; not too loud and not too quiet…
c.    Working with Todd and realizing I couldn’t do this work anymore.
“I changed my mind. I would like some morphine now, please.”
3.    Watching the boys kick the trash can and stopping them
a.    The graduate class when I couldn’t participate
b.    Being helped across the street
c.    The prayer in the park
4.    Sitting in the office that used to be mine—What I see and what I remember
Jargon like “summative and formative assessments”, “metacognition”, “NCLB”, “UDL” (Universal Design for Learning)
a.    Surgery
b.    Principals’ certification
c.    The boys kicking the trash can
Leaving the office/meeting with my colleague
Main idea—My life had changed. I needed to accept that there had been losses without being sunk by them. 
And later: That’s what life is. Pissed and grateful at the same time.
                              Do I contradict myself?
         Very well then I contradict myself,
         (I am large, I contain multitudes.
Perhaps my story is not so tidy as I had thought. I guess I need to write a more complex story, but I’m not sure how. What do you think? How should I begin?


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  12. Hallo an alle, ich bin Valentina und hier, um die wunderbare Arbeit, die Dr. ODION für mich geleistet hat, zu teilen. Nach 5 Jahren in Ehe mit meinem Mann mit 2 Kindern begann mein Mann sich komisch zu verhalten und mit anderen Damen auszugehen und zeigte mir kalte Liebe. Bei mehreren Gelegenheiten droht er, sich von mir scheiden zu lassen, wenn ich es wage, ihn über seine Affäre mit anderen Damen zu befragen war total am Boden zerstört und verwirrt, bis mir ein alter Freund von einem Zauberer im Internet erzählte, der Dr. ODION heißt und Menschen mit Beziehungs- und Heiratsproblemen durch Liebeszauber hilft. Zuerst bezweifelte ich, ob so etwas jemals existiert, entschied mich aber dafür Probieren Sie es aus, als ich mit ihm Kontakt aufnahm, half er mir, einen Liebeszauber zu sprechen, und innerhalb von 48 Stunden kam mein Mann zu mir zurück und begann sich zu entschuldigen. Jetzt hat er aufgehört, mit anderen Damen und seinen für immer und wirklich mit mir auszugehen. Kontaktieren Sie diesen großartigen Zauberspruchzauberer, damit Ihr Beziehungs- oder Eheproblem noch heute per E-Mail gelöst wird: (drodion60@yandex.com) oder Sie können ihn auch unter +2349060503921 anrufen.

  13. I've gotten back with my ex boyfriend with the help of Dr AJAYI the best spell caster online and i highly recommend Dr AJAYI to anyone in need of help. I want to testify of how i got back my boyfriend after he breakup with me, we have been together for 4 years, recently i found out my boyfriend was having an affair with another Girl, when i confronted him, it led to quarrels and he finally broke up with me, i tried all i could to get him back but all to no avail until i saw a post in a relationship forum about a spell caster who helps people get back their lost love through Love spell, at first i doubted it but decided to give it a try, when i contacted this spell caster via his email, and he told me what to do and i did it, Then he did a Love spell for me. 48 hours later, my boyfriend really called me and told me that he miss me so much, So Amazing!! So that was how he came back that same day, with lots of love and joy, and he apologized for his mistake, and for the pain he caused me. Then from that day, our relationship was now stronger than how it were before, All thanks to Dr AJAYI. He is so powerful and i decided to share my story on the Internet that Dr AJAYI real and powerful spell caster who i will always pray to live long to help his children in the time of trouble, if you are here and you need your Ex back or your husband moved to another woman, do not cry anymore, contact this powerful spell caster now. Here’s his contact: Email him at: Drajayi1990@gmail.com You can write his Whatsapp OR viber number : +2347084887094,THANKS TO Dr AJAYI.

  14. am here to give my testimony about Dr latifah who helped me .. i want to inform the public how i was cured from (HERPES SIMPLEX VIRUS) by salami, i visited different hospital but they gave me list of drugs like Famvir, Zovirax, and Valtrex which is very expensive to treat the symptoms and never cured me. I was browsing through the Internet searching for remedy on HERPES and i saw comment of of people talking about how Dr latifah cured them. when i contacted her she gave me hope and send a Herbal medicine to me that i took for just 2 weeks and it seriously worked for me, my HERPES result came out negative. I am so happy as i am sharing this testimony. My advice to you all who thinks that there is no cure for herpes that is Not true just contact her and get cure from Dr maam healing herbal cure of all kinds of sickness you may have like
    (1) CANCER,
    (2) DIABETES,
    (3) HIV & AIDS,
    (5) CANCER,
    (6) IMPOTENCE,
    (8) DIARRHEA
    (9) ASTHMA
    (11) COLD SORE
    HERPES. he also cure my friend from cervical cancer Email: maamtifah@gmail.com or whatsapp hER on +27605775963

  15. POWERFUL SPELL CASTER THAT BROUGHT MY EX HUSBAND BACK INTO MY LIFE AFTER HE LEFT ME EMAIL HER VIA EMAIL maamtifah@GMAIL.COM ADD HER ON WHATSAPP +27605775963 Hello my fellow friends online I'm munilah from USA, I want to use this medium to thank Dr latifah because I've brought back my Ex husband. my husband left me for his ex girlfriend he had before he married me it's a difficult situation for me i called and beg him to come back he refused he said i don't love me anymore i tried every possible way to get him back all was in just I told my friend about her and she gave me Dr. Great email and I emailed him and told her my problem and she told me what to do and I cast a love spell which brought back my husband within 24 hours. If you need help in getting back with your Ex,


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